People-powered oncology research

Turn your health journey into something you can investigate.

Build a structured history of what happened before, during and after diagnosis. Compare your path, treatments, symptoms, exposures and outcomes with relevant participants — and test the questions you already have.

See what happened to people who were once where you are now.

Recordyour journey → Comparewith relevant people → Investigateyour questions → Learnfrom what happened
MY QUESTION Exploratory

Did my fatigue change after I started X?

BeforeStart X+30d+90d
Fatigue754
Sleep456
1,284comparable participants
196also reported X
742have enough follow-up

Important: 19 people who used X also changed treatment during the same period. Filter them out before comparing.

Compare similar people who used Xvssimilar people who did not

Association is not causation. The system helps you see what may explain the difference.

What you get back

This is not a questionnaire you fill in and forget.

The information you contribute becomes a personal research workspace: a timeline you can inspect, compare and use to explore questions that matter to you.

01

Your health timeline

See diagnoses, symptoms, treatments, medications, lifestyle changes, labs and major events in one chronological view.

02

Compare my journey

Compare yourself with people who are relevant by diagnosis, age, treatment context, symptoms, timing and trajectory.

03

Research Explorer

Ask a question, define a comparison and see whether the pattern survives filtering, controls and additional data.

04

What happened next?

Find historical states similar to yours and examine what happened over the following weeks, months or years.

05

What happened before?

Look backwards from diagnosis and compare exposures, events and patterns with patients and healthy controls.

06

My contribution

See which research questions and analyses your data has helped — including findings that weakened or failed to replicate.

You have a question. Let’s test it.

“I started X three months ago and my fatigue improved. Does anything similar appear in other participants?”

OncoProtocol does not answer by finding a few success stories. It looks for comparable people, aligns them at the same point in time and asks what else changed at the same moment.

Comparable participants1,284
Used X196
≥ 90 days follow-up742
31participants are similar enough for a first focused comparison
Now remove those who changed another major treatment at the same time and compare again.
The bigger question

We do not only want to study what happened after illness. We want to investigate what came before.

Treatment, symptoms, survival and quality of life matter enormously. But treating what happened is not the same as understanding why it happened.

OncoProtocol lets people reconstruct and compare the years before diagnosis — without pretending that a statistical association automatically proves a cause.

EXAMPLE QUESTION

Could repeated antibiotic use in early childhood be relevant?

Children with diagnosis Y1,842
Relevant childhood history1,206
Reported repeated antibiotics386
Then compare with healthy controls, family controls and other childhood cancers. Does the difference remain?
YOU
today
B
11 months ago
C
8 months ago
D
16 months ago
Historical matching

Someone else’s past may be more useful than their present.

Find participants whose earlier state resembles your current one, then examine what happened over the next 3, 6 or 12 months as aggregated trajectory data.

Private conversation can exist later, if both people want it. It is not the core product. The core is learning from comparable journeys.

Community research

If the question matters to enough people, the community can investigate it together.

Before creating another duplicate idea, the system checks what already exists, whether enough relevant data is already available and what new information is actually missing.

One person asks→Similar ideas merge→Relevant people join→Protocol is defined→Results are tested again
A child holding an adult's hand
This started for a personal reason

One family can ask the question. A large, careful dataset can begin to answer it.

When someone you love is seriously ill, you start searching — papers, forums, treatments, stories, hypotheses. OncoProtocol is meant to turn part of that searching into something structured and comparable.

Not a project built around selling a treatment, drug, supplement or ideology. A shared research system where positive, negative and contradictory results all remain visible.

Different paths

Conventional, alternative, integrative, spiritual — record what people actually do, then compare what happened.

People do not stay inside permanent categories. Their approach can change over time. The system records beliefs separately from actions, and actions separately from outcomes.

Conventional care Herbs & supplements Integrative approaches Lifestyle changes Self-directed interventions Spiritual practices
Healthy participants matter too

A pattern among patients means little until we know how common it is elsewhere.

If 70% of patients report something and 72% of healthy people report it too, the exciting idea weakens. That is useful. Healthy people, siblings, parents and partners make better comparison possible.

Start with your own research profile

Give the system a careful history. Get back tools to investigate it.

Build your timeline once, keep it updated with what changes, and use the growing community dataset to compare, question and learn.

OncoProtocol is designed to collect, compare and investigate participant-reported and observed health information. It does not replace medical care. Statistical association is not automatically evidence of causation, and community interest alone does not make a medical intervention safe or approved.